More information about this seller Contact this seller. David Oliver. Publisher: Sheldon Press , This specific ISBN edition is currently not available. View all copies of this ISBN edition:. Synopsis About this title Motor neurone disease affects the nerves that control the muscles of the body. Product Description : Showing how to help someone with motor neurone disease live their life, this book spells out what the disease is, what the doctors will do, and how to cope with the difficulties. Buy New Learn more about this copy.
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See all 6. About this product Product Information Showing how to help someone with motor neurone disease live their life, this book spells out what the disease is, what the doctors will do, and how to cope with the difficulties. It also examines possible dietary factors causing the disease, the benefits, and drug trials. It shows how to treat the physical and emotional effects for the family. Additional Product Features Author s.
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Best-selling in Non Fiction See all. Save on Non Fiction Trending price is based on prices over last 90 days. Most health professionals use a type of diagnostic checklist that is known as the El Escorial criteria. It works by checking for distinctive symptoms, known as motor neurone signs. Examples of motor neurone signs include:. If motor neurone signs can be found in three or more regions of your body, a definite diagnosis of MND can be made. Being told that you have motor neurone disease MND can be an emotionally devastating experience and the news can be difficult to take in.
Many people diagnosed with MND experience the classic stages of the grieving process:.
Motor Neurone Disease: A Family Affair - David Oliver - Google книги
If you have been diagnosed with MND, talking to a counsellor or psychiatrist may help combat feelings of depression and anxiety. Taking antidepressants or medicines to reduce anxiety may also help as you move through the stages of the grieving process. Your care team will be able to advise you about this. The MND Association can give you practical advice, support and information about living with MND, as well as providing support on coping with the emotional impact of the condition. If you are diagnosed with motor neurone disease MND , you will be introduced to a team of health professionals who will be involved in your care.
This type of team is often called a multidisciplinary team because it contains experts from many different health care disciplines. For more information, see box, left. Many people with MND draw up an advanced directive. An advanced directive is where you make your treatment preferences known in advance in case you cannot communicate your decisions later because you are too ill.
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You cannot request anything illegal in your advanced directive, such as assisted suicide. Your care team will be able to provide you with more information and advice about advanced directives. Riluzole is the only medication that is available to treat MND directly. Riluzole reduces the amount of glutamate in the body, which can slow the progression of MND. Riluzole can extend the survival rate of people with MND for about three months.
It can also delay the need for artificial ventilation. Very occasionally, riluzole has been known to damage the liver. Therefore, you will need to have regular liver function tests while taking riluzole. If you have a previous history of liver disease, riluzole may not be suitable for you.
There are a range of treatments that can relieve many of the symptoms of MND and improve your quality of life. These are described below. These medicines were originally designed to treat epilepsy and were called anti-epileptic drugs or AEDs, but they have also proved useful in preventing cramping.
Muscle stiffness spasticity can be treated using medication to relax the muscles muscle relaxants. If muscle relaxants are not effective, an injection of botulinum toxin BTA may be given. BTA works by blocking the signals from the brain to the affected muscles. The effects of the injection normally last for up to three months. Another possible treatment for muscle stiffness is intrathecal baclofen therapy. This involves surgically implanting a small pump on the outside of the body, which is connected to the spinal cord. The pump delivers regular doses of a medicine called baclofen into the nervous system.
Baclofen blocks some of the nerve signals that cause muscle stiffness. It can also help control the symptoms of excessive yawning. The symptoms of excessive drooling can be treated using a number of medications. One widely used medication is called hyoscine hydrobromide. This medication was originally designed to help treat motion sickness but has since proved useful in helping to control symptoms of drooling.
If you experience any of the above side effects, you should not drive or operate complex or heavy machinery. Glycopyrrolate is an alternative medication that can be used to control drooling.
Motor Neurone Disease : A Family Affair
It is usually given as an injection. Side effects of glycopyrrolate include:. If your drooling fails to respond to either hyoscine hydrobromide or glycopyrrolate, a medication called atropine can be used. Atropine works by blocking the normal functions of the saliva glands.
It can either be given in tablet form or by injection. Emotional lability episodes of uncontrollable crying or laughter can be treated using antidepressants. These can either be the newer type of antidepressant called selective serotonin reuptake inhibitors SSRIs or an older antidepressant called amitriptyline. These side effects should ease in around seven to 10 days as your body gets used to the medication.
Not everyone with MND will experience problems with their speech, but there is a lot of help for people who do experience speech problems. A speech and language therapist SLT can teach you a number of techniques to make the most of your speech function by making your voice as clear as possible. As MND progresses, you may need some sort of assistive technology to help you communicate.
A range of communication aids are available and your SLT will be able to advise you about the most effective communication aids for you. As MND progresses, the symptoms of dysphagia problems with swallowing will become so severe that you will no longer be able to eat and drink in the normal way. One widely used treatment for dysphagia is a feeding tube known as a percutaneous endoscopic gastrostomy PEG tube.
Motor Neurone Disease : A Family Affair
A PEG tube is surgically implanted into your stomach abdomen through a small incision on the surface of the stomach. PEG tubes are designed for long-term use and last for up to six months before they need replacing. If you experience pain due to MND, the type of painkiller that will be recommended to help control symptoms will depend on how severe your pain is.
Mild to moderate pain can often be controlled using non-steroidal anti-inflammatory drugs NSAIDs , such as ibuprofen. More severe pain can be treated using an opiate-based painkiller, such as morphine. Originally, gabapentin was designed to treat epilepsy, but it has also been found to be useful in treating pain.
Motor Neurone Disease: A Family Affair (Overcoming Common Problems)
The possible side effects of gabapentin include:. If you are prescribed gabapentin, do not suddenly stop taking it as you will experience withdrawal symptoms. These could include anxiety, insomnia, nausea, pain and sweating. If you wish to stop taking gabapentin, your GP will arrange for your dose to be gradually reduced over the course of a week.
By reducing your dosage slowly in this way, you should not experience any withdrawal symptoms. As MND progresses, respiratory muscle weakness will affect most people with the condition. Respiratory muscle weakness usually develops gradually, but it can also occur suddenly and, on very rare occasions, it may even be the first sign of MND.
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It is important to discuss respiratory problems with your GP before they occur. Some people with MND use mechanical ventilation as a way of supporting their breathing. There are several systems that provide ventilatory support, which are known as non-invasive ventilation NIV. In all cases of mechanical ventilation, air is sucked in, filtered and pumped into the lungs via a facemask or a nasal tube. Your respiratory specialist, or a palliative care specialist, can discuss all of the options that are available to you. Deciding what treatment options you want to use in the event of respiratory failure is an important part of drawing up a treatment plan and making an advanced directive see above.
This can obviously be a very difficult and upsetting decision, and you may wish to discuss it with your loved ones.